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Growth Hormone Disorders
Journal Scan
Can adherence to r-hGH therapy be improved with targeted interventions?
Renal mTOR a potential clinical biomarker in lupus nephritis
Weekly cisplatin alone or with imatinib shows promise in advanced chordoma
Panhypopituitarism may not lead to worse pregnancy outcomes
Rare disease drug development funding increased 28% in 2021
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Growth Hormone Disorders
January 20, 2022

Patients identified by digital medication adherence monitoring as having low adherence to recombinant human growth hormone (r-hGH) therapy who received nurse-led educational intervention saw improvement in medication adherence, according to a study. In...

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Alagille Syndrome
January 16, 2022

According to a new report by the rare disease organization Global Genes, interest in the rare disease space is growing, with a total of $22.9 billion raised by rare disease therapeutic developers in...

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Lupus Nephritis
January 20, 2022

A new study found that mammalian target of rapamycin (mTOR) activation is a potential biomarker of disease activity and may help predict clinical prognosis in patients with lupus nephritis (LN)/ In the retrospective study,...

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Sarcoma
January 19, 2022

Treatment with weekly cisplatin alone or in combination with imatinib showed antitumor activity in patients with chordoma, according to a study. After treatment, 65% of patients who previously had progressive disease were progression-free...

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Polls & Quizzes

Quiz: Growth Hormone Deficiency
Jan 12, 2022

Podcasts

Rare Disease Drug Shortage During COVID-19 Effort Creates Dilemma
Feb 15, 2021

Quizzes

Quiz: Growth Hormone Deficiency
Jan 12, 2022

Videos

Usher Syndrome: A Patient and Husband/Caretaker Perspective
Jan 03, 2022
Thyroid Eye Disease
December 5, 2021

Ocular surface symptoms are a common complaint for patients with thyroid eye disease (TED). Data from a new study presented at the ASOPRS 52nd Annual Fall Scientific Symposium found that teprotumumab significantly improved...

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Interstitial Lung Disease
October 21, 2021

When used in a multidisciplinary setting, nailfold videocapillaroscopy (NVC) can increase the diagnostic accuracy of interstitial lung diseases (ILD), especially in connective tissue disease-related ILD (CTD-ILD), followed by interstitial pneumonia with autoimmune features (IPAF)...

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